{"id":12497,"date":"2024-06-12T09:48:55","date_gmt":"2024-06-12T09:48:55","guid":{"rendered":"https:\/\/used82.com\/?p=12497"},"modified":"2024-06-12T09:48:55","modified_gmt":"2024-06-12T09:48:55","slug":"celine-dion-opens-up-about-her-decision-to-publicly-share-stiff-person-syndrome-diagnosis","status":"publish","type":"post","link":"https:\/\/used82.com\/?p=12497","title":{"rendered":"C\u00e9line Dion opens up about her decision to publicly share stiff-person syndrome diagnosis"},"content":{"rendered":"<div>\n<h2 class=\"summary_summary__q_VAA\">C\u00e9line Dion has opened up about why the &#8216;burden&#8217; of keeping her diagnosis a secret ended up &#8216;too much&#8217;<\/h2>\n<p class=\"text_text__nEn66\"><strong>C\u00e9line Dion has opened up about why she decided to go public with her diagnosis of stiff-person syndrome.<\/strong><\/p>\n<p class=\"text_text__nEn66\">In 2022, the &#8216;My Heart Will Go On&#8217; singer\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/news\/celine-dion-incurable-neurological-disease-388966-20221208\">revealed she&#8217;d been diagnosed<\/a>\u00a0with an incurable autoimmune neurological disease called stiff-person syndrome (SPS) in an emotional video posted to\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/instagram\">Instagram<\/a>.<\/p>\n<p class=\"text_text__nEn66\">Since divulging the news, the 56-year-old has continued to speak out about the condition and her journey with it, now opening up about why she went public with her\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/health\">diagnosis<\/a> in the first place.<\/p>\n<p class=\"text_text__nEn66\">In her post to\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/instagram\">Instagram<\/a>\u00a0two years ago, Dion said she&#8217;d &#8216;been dealing with problems with [her]\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/health\">health<\/a>\u00a0for a long time&#8217; and it had been &#8216;really difficult&#8217; for her to &#8216;face [her] challenges and to talk about everything that [she&#8217;d] been going through&#8217;.<\/p>\n<p class=\"text_text__nEn66\">She then revealed she&#8217;d been diagnosed with stiff-person syndrome &#8211; a condition which affects one in a million people and causes muscle stiffness and spasms which can worsen over time.<\/p>\n<p class=\"text_text__nEn66\">And the\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/music\">singer&#8217;s<\/a>\u00a0since opened up about why it was so important to her to tell the world about her diagnosis.<\/p>\n<div class=\"article-image_articleImage__eyzAn\">\n<div class=\"article-image_imageWrapper__ANtPE\"><img decoding=\"async\" src=\"https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=3840&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png\" sizes=\"100vw\" srcset=\"https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=640&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 640w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=750&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 750w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=828&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 828w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1080&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 1080w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1200&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 1200w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1920&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 1920w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=2048&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 2048w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=3840&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf3c3d01899c94107\/66680f182f9a84063ec8a067\/celine-dion-why-went-public.png 3840w\" alt=\"C\u00e9line Dion explained why she decided to go public with her diagnosis (X\/ @TODAYshow\/ NBC) \" data-chromatic=\"ignore\" data-nimg=\"fill\" \/><\/div>\n<p><cite class=\"image-credit_imageCredit__YMlqS\">C\u00e9line Dion explained why she decided to go public with her diagnosis (X\/ @TODAYshow\/ NBC)<\/cite><\/div>\n<p class=\"text_text__nEn66\">In an interview appearance on NBC&#8217;s TODAY show, Dion explained that she &#8216;could not&#8217; hide the truth &#8216;anymore&#8217;.<\/p>\n<p class=\"text_text__nEn66\">She\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/x.com\/TODAYshow\/status\/1800131654486298705\" target=\"_blank\" rel=\"noopener\">continued<\/a>: &#8220;What do you want me to say? I have what? We did not know what was going on. I should&#8217;ve stopped and taken the time to figure out and taken the time like it&#8217;s not enough.<\/p>\n<p class=\"text_text__nEn66\">&#8220;My\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/sex-and-relationships\">husband<\/a>\u00a0as well, was fighting for his own life. I had to raise\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/parenting\">my kids<\/a>, I had to hide, I had to try and be a hero, feeling my body leaving me, holding onto my own dreams.<\/p>\n<p class=\"text_text__nEn66\">&#8220;And lying, for me, the burden was<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/mental-health\">\u00a0too much<\/a>. Lying to people who got me where I am today &#8211; I could not do it anymore.&#8221;<\/p>\n<p class=\"text_text__nEn66\">The interview follows after the singer\u00a0<a class=\"link_link__LDfG6\" href=\"https:\/\/www.unilad.com\/celebrity\/news\/celine-dion-stiff-person-diagnosis-update-382386-20240316\">took to her Instagram again earlier this year<\/a>\u00a0in March for SPS Awareness Day.<\/p>\n<div class=\"article-image_articleImage__eyzAn\">\n<div class=\"article-image_imageWrapper__ANtPE\"><img decoding=\"async\" src=\"https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=3840&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg\" sizes=\"100vw\" srcset=\"https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=640&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 640w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=750&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 750w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=828&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 828w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1080&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 1080w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1200&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 1200w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=1920&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 1920w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=2048&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 2048w, https:\/\/images.ladbible.com\/resize?type=webp&amp;quality=70&amp;width=3840&amp;fit=contain&amp;gravity=auto&amp;url=https:\/\/images.ladbiblegroup.com\/v3\/assets\/blt949ea8e16e463049\/bltf9601710121c510a\/666817274398662779083fe2\/GettyImages-1986666748.jpg 3840w\" alt=\"Dion said she couldn't hide the truth 'anymore' (Neilson Barnard\/Getty Images for The Recording Academy)\" data-chromatic=\"ignore\" data-nimg=\"fill\" \/><\/div>\n<p><cite class=\"image-credit_imageCredit__YMlqS\">Dion said she couldn&#8217;t hide the truth &#8216;anymore&#8217; (Neilson Barnard\/Getty Images for The Recording Academy)<\/cite><\/div>\n<p class=\"text_text__nEn66\">She wrote: &#8220;Today the world recognizes International SPS Awareness Day.<\/p>\n<p class=\"text_text__nEn66\">&#8220;As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS). Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible.&#8221;<\/p>\n<p class=\"text_text__nEn66\">She continued: &#8220;I am deeply grateful for the love and support from my kids, family, team and all of you!<\/p>\n<p class=\"text_text__nEn66\">&#8220;I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it! We can do it!&#8221;<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>C\u00e9line Dion has opened up about why the &#8216;burden&#8217; of keeping her diagnosis a secret&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-12497","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"aioseo_notices":[],"views":53,"_links":{"self":[{"href":"https:\/\/used82.com\/index.php?rest_route=\/wp\/v2\/posts\/12497","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/used82.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/used82.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/used82.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/used82.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=12497"}],"version-history":[{"count":0,"href":"https:\/\/used82.com\/index.php?rest_route=\/wp\/v2\/posts\/12497\/revisions"}],"wp:attachment":[{"href":"https:\/\/used82.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=12497"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/used82.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=12497"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/used82.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=12497"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}